I went to Chicago this weekend for yeartly metabolic testing. This time the results weren't exactly what I wanted to see.
The first test, an oral glucose tolerance test, my blood sugar spiked at 216, which isn't all that bad, but it ended at 152 when it should have been under 140. They also said that my c-peptides were high. Really high. like 9.6 when the upper end of normal is around 3.4.
Once again I don't think they really know what to do with me because they're not sure why I get the results I do. They've mentioned that it could very well be my weird anatomy and whacky vasculature, but like I said. they're not sure.
I have two more sets of metabolic tests to be done in June and hopefully they'll be more normal like. We'll see, until then I haven't been told to change anything.
On the non islet front, I was diagnosed this past week with frozen shoulder. It's fairly common with people that have type 1 diabetes and I'm not sure what triggered it, but I start physical therapy this week. yay
Dr. O at UIC has reluctantly said I can use Motrin if I need it during P.T as long as I drink a lot of water to help protect my kidneys. Nsaids in combination with immunosupression medications are harsh on the kidneys.
Yet another good reason for islet cell encapsulation to be approved for human trials soon. And that sadly takes funding on a national and private level, neither of which are free flowing in the current economy.
*sigh*
we all want a cure, no one wants to fund it.
btw. this months donation goes to CellmatesOntheRun because Dr. O ran in the Boston Marathon on Monday. And how else to I say thank you for being a crazy person that runs all the time to raise money for people like you and me?
Saturday, April 24, 2010
Tuesday, March 30, 2010
*sigh*
I got a bad haircut today. Not just a little bad, really bad. Bad, as in, I'll be getting a second haircut in a few days to fix the enormous badness of it all kind bad.
That being said I donated it again to Children With Hair loss, and a child will be getting a new head of hair out of it, so it's all good.
So here's my theme song for the day.
Yay bad hair.
That being said I donated it again to Children With Hair loss, and a child will be getting a new head of hair out of it, so it's all good.
So here's my theme song for the day.
Yay bad hair.
Sunday, March 21, 2010
Community Heath Charities
This month's donation is heading to Community Health Charities.
CHC's Michigan chapter supports a number of health related charities in Michigan including the American Diabetes Association.
You can find your state's chapter here if you are so inclined.
Links of course in the side bar.
CHC's Michigan chapter supports a number of health related charities in Michigan including the American Diabetes Association.
You can find your state's chapter here if you are so inclined.
Links of course in the side bar.
Saturday, March 20, 2010
Haiku And
So much depends on
the singing of a bird on
a cold winter's day.

Green Bean two days after my last trip to Chicago.
He gets upset every time I leave him for more then a night and chews his feathers until he's naked.
His feathers are finally starting to come back in.
After my transplant the only feathers he had left were the ones he couldn't reach on his head.
So sad.
It's rough being little and green.
The poem is something I wrote soon after I got my first bird 20 years ago.
the singing of a bird on
a cold winter's day.

Green Bean two days after my last trip to Chicago.
He gets upset every time I leave him for more then a night and chews his feathers until he's naked.
His feathers are finally starting to come back in.
After my transplant the only feathers he had left were the ones he couldn't reach on his head.
So sad.
It's rough being little and green.
The poem is something I wrote soon after I got my first bird 20 years ago.
Friday, March 19, 2010
Next Stop, Chicago Marathon
Cellmates On The Run met their fund raising goal of $10,000 for the 2010 Shamrock Shuffle this weekend. The race is Sunday so it's not to late to help blow that goal out of the water!
Check it out.
Check it out.
Friday, March 5, 2010
Random Entertainment - Tilt Shift
Small life in Saxon Switzerland.
by Christoph Schaarschmidt
Music:
Rocky Votolato
Uppers aren´t Necessary
by Christoph Schaarschmidt
Music:
Rocky Votolato
Uppers aren´t Necessary
Saturday, February 13, 2010
Children's Rare Disease Network
We decided this month's donation should go to Children's Rare Disease Network.
Children's Rare Disease Network provides education, support and resources to parents, families of children with rare diseases, as well as the researchers that support them. Diseases like Ivemark Syndrome and MODY syndrome. Diseases that are less understood and well, largely underfunded in the research spectrum.
You can find more information about CRDN here.
Children's Rare Disease Network provides education, support and resources to parents, families of children with rare diseases, as well as the researchers that support them. Diseases like Ivemark Syndrome and MODY syndrome. Diseases that are less understood and well, largely underfunded in the research spectrum.
You can find more information about CRDN here.
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